Tuesday, April 21, 2009

Living In My Skin...A Must Read!

Someone I love relies on me in ways you will never understand. Someone I love endures pain and challenges that break my heart and renew my spirit at the same time. Someone I love is unable to advocate for themselves for things that most of us take for granted. Someone I love will never have the opportunities that every child should have. Someone I love will need unconditional love and support after I am gone - this frightens me to the core. Someone I love encounters pity, stereotyping responses, and prejudice at every turn, because they look, act, and/or learn differently than others. Someone I love has needs that require me to allow "outsiders" to have power and input in areas that should be mine alone to meet. Someone I love will continue to look to me for everything in life long after other children are able to assume a place as part of the world. Someone I love has needs that require more time and energy than I have to give sometimes. Someone I love has needs that mean I am not always able to meet basic needs of my own. Someone I love has needs that have become the driving force behind major decisions my family makes. Someone I love has changed me in ways I will never be able to describe. Someone I love has taught me about love and about the really important things in life...And still others don't understand what it is to be me.. they aren't living in my skin.
Living In My Skin The Insiders View of Life With a Special Need Child A New Book by Lori Hickman
Lori Hickman Interview
As most of you know...I have a son with 'special needs'. He is a precious blessing. He has brought so much joy to my life...and yet there are times that I feel so deeply alone with my fear. What will happen to him once I can no longer care for him on my own or am gone? Matthew has given me the opportunity to see things that some may over look in their everyday lives.
I love this book! It is as if Lori Hickman has seen right inside of my heart and dictated it to the world.

1 comment:

  1. This is really poignant, Monica. I so admire Moms who do all that any mom has to do and then so much more with a special needs child. I have some of that same fear with my kids, but unlike yours, mine will outgrow their dependance on me. Always remember, though, that God is will be where you can't be, and will tend to all that concerns you.

    Love your heart, gal!

    Blessings to you dear friend!!
    You both are my heroes!!