Showing posts with label Autism. Show all posts
Showing posts with label Autism. Show all posts

Thursday, November 11, 2010

Climbing Castles & Conquering Fears

I got an e-mail from Matthew's teacher this afternoon. Today the class went on a field trip to Shangri La in Orange Texas, and then to Lions Club Park for a picnic. She shared with me that while at the park, Matthew climbed to the top of the castle. With all of his anxieties about new situations, and fear of heights....going up there is a pretty big deal. She said he yelled the whole way, but he wanted to climb it , and he did. He was quite proud of himself. I've noticed this quite a bit with Matthew lately. He battles with the desire to try new things...and the fear that generally stops him. This made me think about our trip to the S.E. Texas State Fair. He walked around all day with Randy and I ...while his brother and sister rode some of the rides. He watched them, and I could see that he wanted to...but each time we asked him he answered... "NO!" That is until he watched them ride the bumper cars. He took some tickets from my bag, grabbed his dads hand, and pointed at the cars. I asked him if he wanted to ride and this time his answer was YES! So there he stood in line with his dad. The longer they waited, the more nervous he became. When their turn came up, he began to scream. Randy looked back at me...he was not sure whether to go forward or to help him away from the cars. But Matthew continued to walk forward. He screamed until they were both sitting in the same bumper car and for a few seconds after the car began to move. Eventually he relaxed and enjoyed himself. When the ride was over...he was beside himself with pride.

Wednesday, November 3, 2010

On The Mend

Well, Matthew's eardrum did not ruptured after all...thank goodness! He does however have a pretty severe ear infection. Bad timing too, as today he would have made the really fun trip with his class to Plantersville Texas, for the Texas Renaissance Festival. I hate for him to miss anything... this being his last year of School. Our visit at the doctors office yesterday went pretty much as expected. Randy restrained, The Doctor examined, Matthew screamed, and I to no avail tried to calm and comfort him. This is just one of the many hurdles of having a non-verbal child. After the doctor finished the examination, we were all pretty much  frazzled and in need of a sedative. Randy took Matthew back out to the car while I got the prescriptions, and talked with the Doctor. What the screaming boils down to is anxiety....so maybe an anti-anxiety medication is what he needs? But he is only like that when he presented with the unfamiliar. He has the sweetest personality, and a most outstanding sense of humor. Other than the occasional antibiotic...he has never been on medication of any kind. I'm just not sure what to do.

Tuesday, November 2, 2010

Waiting for Dr. Appointment

I am pretty sure that Matthew's eardrum has ruptured, and I'm feeling pretty lousy about it. I've always been pretty good at just knowing when something is off with him. He has had what I thought was a cold for the last few days, but sadly, I had no idea his ear was bothering him. It certainly hasn't affected his appetite one bit! Taking Matthew to the doctor is not an easy task, and to be honest...my stomach is currently in knots. He is going to begin screaming at the door, he is going to scream in the waiting room, and every eye in the place will be fixed on us. He is now bigger than me and I am no longer able to distract, or restrain so that the doctor can examine him. Thank God for my wonderful Randy...he will be meeting us there to help.

Monday, October 11, 2010

Saturday Morning

Saturday=Sleeping in even just a little! Lay in bed, drink coffee, read or maybe watch a little something on the television. In other words, wake up at our own pace day. Well, sleep in worked out, but the rest was not meant to be! I opened my eyes at around 9 AM, thought WHAT IS THAT SMELL, and bolted out of the bed. The kitchen and living room were filled with smoke! I shouted for Randy...who must have already bolted from the bed too, because he was behind me in a flash. We could barely see the anything, but I made my way to the back door, as he made his way to the kitchen. The microwave was on fire!

It didn't take us long to figure out that Mr. Matthew had decided to make his own breakfast. He took a hot pocket out of the freezer, and popped it in the microwave. I am not sure if he removed the wrapper, not do I have any idea how long it had been cooking. Apparently it must have been a long time, as he obviously got bored and went on back to his room. The microwave got so hot that the breaker flipped, which made the it stop running thank goodness. The fire melted the door. On the inside, the hotpocket looked like a piece of charcoal, and was still glowing. We got the smoke out of the house as fast as we could, but I can still smell it.

We were fortunate in many ways. Things could have definitely turned out another way Saturday Morning. None of our fire alarms went off. They are tested every month...and even tested normal that day. I am not sure why they didn't work, but we have new alarms now. We have a new heavy duty microwave, with a child lock. We have removed the knobs on the stove. Funny, we try so hard to encourage Matthew to do as many things as he is able independently and when he does...it scares the hell out of us.

Saturday, March 20, 2010

10 Words To Describe Our Children

Well, it is another cold, rainy Saturday (hopefully the last COLD) and we are all taking full advantage of a day like this...as my children like to say...we are "Chillaxing". Randy and I were in our room talking about how over the years, the kids have changed, yet...stayed the same, and how much they differ from each other.

So, we came up with 10 words to describe each of them.

Matthew

1. Musical

2. Affectionate

3. Hungry

4. Routine

5. Gassy

6. Talkative

7. Funny

8. Mischievous

9. Autistic

10. Silly

Stephen

1. Studious

2. Conservative

3. Curious

4. Inquisitive

5. Mischievous

6. Musical

7. Adventurous

8. Spiritual

9. Honest

10. Nerdy

Caleb

1. Talkative

2. Musical

3. Handsome

4. Thin

5. Smiley

6. Mischievous

7. Prankster

8. Tender

9. Happy

10. Diplomatic

Shelby

1.Natural

2. Ditsy

3. Mischievous

4. Gabby

5. Giggly

6. Casual

7. Musical

8. Helpful

9. Strong

10. Compassionate

Friday, February 19, 2010

His World Is Good

It's 3:35 Friday afternoon...Matthew's bus arrives home as usual. The bus assistant puts his Friday treat in his hand, (a couple pieces of candy)makes sure that he has his jacket and Matthew responds with a hug. He turns and heads up the driveway, toward me standing at the front door. He see's me, he is smiling, he is happy...he's always, ALWAYS happy! His head is bobbing from side to side, his hands are flapping close to his face, he is making that shrieking noise...all of which he does when his world is good.

Today is just the same as yesterday...and that is exactly how he likes it. The cars that had been stopped by the flashing lights of the bus slowly begin to move. It has almost become somewhat of a game to watch and see how many of the drivers simply drive on...and how many are going to turn their head and stare at him as he bobs, flaps, and shrieks up the driveway. He is oblivious to all of this...all he can see is me standing at the door, waving and smiling back at him....all that matters is that today is the same as yesterday...and his world is good.

We got new neighbors recently and all this week they have been having their roof re-shingled. Today when Matthew got off the bus...not only did these 5 roofers stare at him...but they stopped what they were doing, and walked over to our driveway to get a closer look. You would think that after 21 years of being his mother, the stares would no longer make me uncomfortable...and to be honest, most of the time it truly doesn't. But occasionally, like today, I can't help it.

Now, it wasn't like they were laughing at him, or making fun...at least I don't think they were...but they were staring at my son like he was some kind of freak show. I felt my skin get hot, I felt that queasy feeling in my stomach and I felt like crying. For the first time in a VERY long time I felt like shouting, "What the hell are you staring at!?!" But...I didn't...he reached the door, handed me his candy and jacket, smiled sweetly and gave me a hug... just as he did yesterday...and my world is good.

Thursday, February 4, 2010

Temple Grandin-Different Not Less

This Saturday, February 6th, HBO will feature a Biopic film on life of Temple Grandin, a woman who has become one of the top scientists in humane livestock handling. She obtained her B.A. at Frankin Pierce College, her M.S. in Animal Science at Arizona State University, received her Ph.D in Animal Science from the University of Illinois in 1989. She teaches courses on livestock behavior and facility design at Colorado State University and consults with the livestock industry on facility design, livestock handling, and animal welfare.

Temple has authored over 400 articles in both scientific journals and livestock periodicals on animal handling, welfare, and facility design. She has also written six books...two of which have been on the best seller list in both the United States and Canada.

Right about now you may be thinking, She really sounds like a very intelligent woman...but what is it that sets her apart from all the many other intelligent human beings in this world?

I could go on and on listing the accomplishments of Temple Grandin...but let me back up to 1947.

Temple Grandin was born in Boston, Massachusetts. Her father was a real estate agent, and her mother was a writer, singer, and actress. As a toddler she spoke very little, in fact...she did not speak at all until the age of three. She did not like to be held or touched, and when provoked, was prone to raging temper tantrums. She displayed the classic symptoms and was diagnosed with Autism.

She fixated on and was stressed by spinning or rotating objects and as she matured she began having panic attacks. She fled to her aunts cattle ranch one summer and well...I'll stop here just in case you may want to watch the movie...I don't want to ruin it for you ...but I will tell you that summer is when her life took on a new direction.

"I can remember the frustration of not being able to talk. I knew what I wanted to say, but I could not get the words out, so I would just scream." ~Temple Grandin

View Dr. Temple Grandin's professional resume.

Autism affects 1 in 110 children...1 in 70 boys. Chances are...if you do not have an autistic child yourself...Someone close to you probably does or will in the near future. This is an urgent and growing public health crisis that affects most individuals across their lifespan and demands a commensurate level of action from both the public and private sectors. WE NEED ANSWERS!
AUTISM SPEAKS It's time to listen!

"You have got to keep autistic children engaged with the world. You cannot let them tune it out."
~Temple Grandin


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Feb. 6th, 10:00 pm
The movie was really good...Temple Grandin is an amazing woman!